We Need Each Other
Alright… there is no easy way to go into what I have to say… other than I heard a song by Sanctus Real that made me want to write this… First the lyrics…
Sanctus Real – We Need Each Other
I think I caught a glimpse of
Life without friends
Bitter, empty, hollow, dark and lonely
We never meant to hurt each other
So Can’t we trust again
And take it as a chance
To keep on growingI don’t know why it doesn’t come easy
But I know that we could be happy
If we’d only learn to loveOh oh we need each other
So what’s the fighting for
Oh oh we need each other
Please don’t close the door
Oh oh we need each other
Through all the highs and lows
Oh oh we need each other
Cuz no one’s meant to live aloneLife revolves around the need
Of having someone
Causing every complicated feeling
Oh and I don’t want to loose you
And there is nothing wrong with
Telling me what you need
To keep our love strongIt’s just a part of being a family
Taking the good with the bad and the ugly
If we could only learn to loveOh oh we need each other
So what’s the fighting for
Oh oh we need each other
Please don’t close the door
Oh oh we need each other
Through all the highs and lows
Oh oh we need each other
Cuz I don’t want to be aloneOh Oh we need each other
Fathers and Mothers
Oh oh we need each other
All your sisters and brothers
Oh oh we need each other
We need friends and lovers
Oh Oh we need each otherWell I need you
You need me
Cuz that’s the way
It’s meant to be
I need you
We need each other
(I don’t want to be alone)
[x2]
So as I was getting my tax stuff together =P This song caught my attention. Especially the “We Need Each Other”. And it got me thinking about a lot of things that have been going on the last few weeks.
I am very sad and disappointed in the community of “special needs” parents. I can’t point fingers or blame any one specific hearing only one side of many stories. But one thing that has shocked me is the disrespect there is going on. To tell another mother their child has no chance of getting better because they were born with disabilities and not typical at one time is like saying you are God and you can see the future and know what this childs will is. When I heard this I just winced with pain for this mother. Not to mention that I don’t buy that statement for one bit… cause if this was true… Santana would be doing more than this child born with disabilities… but he isn’t. I am content with Santana where he is. I praise God when I hear improvements that others are making. Do I wish Santana could do some of this? … Of course. But God knows what I can handle… and let me tell you… Tyree has me so busy I don’t think I would have time to do feeding that can take an hour each sitting or whatever else. IT is time consuming no matter what stage or realm your child is at. Everyone has their own time table. Their own level of pain. Their own size of plate and what is on it. There is no comparison chart for these Angels of God.
Really… what is in it for anyone to sit and talk about whose child is or isn’t doing what? What does it do for the soul to bash what a mother wants to do with their child? Not everyone can afford therapies and are lucky to even get traditional. And I don’t think anyone should feel bad for those who can’t do it. It is all in God’s plan. If it is his will I believe he will provide a way. OR… he will let you go and learn the hard way like I have in so many new cutting edge therapies. I got SO caught up in it and now I can hear God saying… Are you done yet? Can I take over? I don’t think doing these things is wrong. I know for a fact many things that have worked VERY well for lots of kids. I still want to try a few more things. BUT…. What IS wrong is putting down the people that can’t afford it or for some reason can’t or do not want to do it.
What happened? Could it be Satan?! (Ha… that was written with the SNL Church Lady Accent) No.. but really. Why is there so much gossip. Why do people care what others are doing with their kid. Why can’t we worry about our own kids and when parents are down… lift them up… not rip them apart until there is nothing left and they feel like hope is gone. It breaks my heart to see other mothers in so much pain. To know they have been attacked. Before you open your mouth. Stop and think where you were at one time and don’t pretend like those feelings of giving up never surface. Everyone gets tired… and that is when we go to the living water and get revived again. We can go to that point of dispair but we can NOT stay there.
I am not sure anyone means to cut someone down… at least I would hope not. But we all need to think before we speak… This includes me too… I can hear you… But really. If a child isn’t easily awoken… like Santana… Don’t sound so shocked or act like it’s not normal. This is his defense mechanism to shut the world of therapy off. Don’t say… UH… your child isn’t doing this or that?! Don’t say that they never will. Can we all come together. We need to make a positive bond and be there for each other.. not bash each other behind our backs. Together… we need to BELIEVE in our children. We need to speak positive truth into each other. Don’t assume one’s life is so negative cause you don’t know what is going on with someone beyond the words that are written. If there is a lot of pain on the black and white… imagine what they feel on the inside. What is going on in the depths of their heart and soul. Stop comparing. Start loving each other and being there for each other. Start believing again. I do not like to see the animosity that has been going on. I feel it in the atmosphere in the blog world. I can only pray that moms won’t be so selfish and reach out to one another. I really do not want to see my friends hurt any more. I have been there and it sucked… but I have an amazing supportive husband that picked me up and dusted off my knees and reached out his hand and made it clear that I only need him and the boys… and God too. No one can bring us down!
I love all those who have swooped me up when I have been down and I will be there for you in a heart beat. You know who you are.
Oh… by the way… Santana has some crud going on… but is still holding himself well as far as his O2 Sats are concerned. I pray it goes away FAST! His newest things… LOTS of sounds, He has been reaching up the last few days with his arm… generally at James when he talks to him in the AM before he leaves for work. He pushed his play doh away today when he was done… then closed his eyes… but opened when he thought no one was looking. He cries when it gets too quiet.. this is my favorite… when he thinks everyone left he will cry… moan.. whatever you want to call it. It is GREAT! His eye contact is getting better and better. We ran out of Valproic Acid on our journey of taking it off anyway… so I am cutting it and not filling it. We were getting down to nothing anyway. So pray there is NO increased seizure activity!!!!
Jett starts Baseball this week! Busy busy schedule this spring!!!! 3 times a week… i will be taking my Sunday naps for sure!!!!
Thanks for the prayers. Continue to pray for all of Santana’s pals and may we as parents come together as one and believing in our kids!
Exodus 23:1
“Do not spread false reports. Do not help a wicked man by being a malicious witness.
Exodus 23:1
“Do not spread false reports. Do not help a wicked man by being a malicious witness.
John 13:34
“A new command I give you: Love one another. As I have loved you, so you must love one another.”
Romans 12:10
Be devoted to one another in brotherly love. Honor one another above yourselves.
Galatians 5:13
You, my brothers, were called to be free. But do not use your freedom to indulge the sinful nature ; rather, serve one another in love.
1 John 4:7
Dear friends, let us love one another, for love comes from God. Everyone who loves has been born of God and knows God.
Proverbs 3..
27 Do not withhold good from those who deserve it,
when it is in your power to act.
28 Do not say to your neighbor,
“Come back later; I’ll give it tomorrow”—
when you now have it with you.
29 Do not plot harm against your neighbor,
who lives trustfully near you.
30 Do not accuse a man for no reason—
when he has done you no harm.
31 Do not envy a violent man
or choose any of his ways,
32 for the LORD detests a perverse man
but takes the upright into his confidence.
33 The LORD’s curse is on the house of the wicked,
but he blesses the home of the righteous.
34 He mocks proud mockers
but gives grace to the humble.
35 The wise inherit honor,
but fools he holds up to shame.
PROVERBS 10….
Uncategorized | Santana's Mommy | 
February 26, 2010 6:02 pm
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By Lesley, February 27, 2010 @ 8:12 am
I loved this! I am so happy that Santana is doing so good. Everyday should be mothers day for you Lindz. Keep up the great work. You’re the best!