o2 be free

Today we had to head to St. Joes.  Not like that is a big surprise.  He had an appointment with Pulmonary.  What perfect timing because before we left, his oxygen dropped to 82% as you may have noticed on my Twitter update.  It took 3 liters of O2 to get him to 91-92.  I was pretty scared and didn’t know what was going on.  Not to mention the day before when his teacher and therapist from school came, he started choking and holding his breath.  There was NOTHING to suction out and he looked up like SAVE ME!  IT was pretty sad and I am pretty sure it broke Ms. Jacci’s heart… and gave her a heart attack while he was at it.  With all the blood he is hacking up and what not… things have been up and down.  On the way up to Joe’s he had a HUGE cough and a TON of junk came out.  It was slimy.  I am sure it was almost like a mucus plug cause once it came out his sats with the O2 was 97%  BIG difference.  He came off O2 by the time we got there and was good at 95%  By the time we took it with her in the room it was 91%  But as long as it is about 90%  I am ok.

Pulmonology wants to do a Bronchoscopy but instead of putting him out 2 times wants to get GI to come in and do an Endoscopy also so we can see where all these GI bleeds are and what the future holds with these.  So hopefully they can tag team and get it done and over with.  As we all know… It is NOTHING to go under for something like that… but with Brain injured kids, they may never wake up or be left with a ventilator.  I am not worried though… Not when I am allowing them to slice open his whole back and bang on it like a carpenter.  That is the one I will sweat out a little more.

I kinda wonder if seizures are bringing his o2s down again… I think he is having a lot more seizure than we can tell.  His tone is in HIGH gear and he is VERY VERY tight.  His eyes keep rolling up but we can generally poke him on the forehead and he brings them down.  So I do not know what is up with that.

Gotta go… He is choking.  =(

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categories Uncategorized | Santana's Mommy | datetime February 17, 2010 7:02 pm

1 Comment

  • By Aunt Deb, February 17, 2010 @ 8:43 pm

    I just want to sit and hold him and make it all better….then I want to hold and rock you too. Hang in there. Love the song!!!!

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