Lovely Bones
Right now. I am mad. I am very angry! First I gotta go back to one doctors statement about Santana’s drop foot. Within the first few months after Santana’s accident, we were at an appointment with the medicine and rehab doctor. My mom was with me… boy does she always have the right things to say. She asked the doctor why they didn’t brace him right away? The answer we got, “Because they didn’t think he was going to make it out alive.” Heaven forbid insurance pay a couple hundred for braces!!!! Look at the long term problems we face now because of it… I swear whoever decides to deny things must not look at the big picture.
Anyway… back to today. So I have been watching videos and researching Spinal rod surgery and Hip dislocation surgery options. With the hips… I became fuming mad when I read an article on About.com that stated this:
- “The success of treatment depends on the age of the child, and the adequacy of the reduction. In a newborn infant with a good reduction, there is a very good chance of full recovery. When treatment begins at older ages, the chance of full recovery decreases. Children who have persistent hip dysplasia have a chance of developing pain and early hip arthritis later in life. Surgery to cut and realign the bones (hip osteotomy), or a hip replacement, may be needed later in life.”
They are out more now than before. _ This was Santana May 2009
Normal Hip X-Ray on the left- taken off google.
With tears in my eyes. I am sickened by this statement. Sure he doesn’t cry when the doctor lifts his leg up now. BUT WHAT ABOUT THE FUTURE? What will he do then? HOw much pain will he be in? How much harder will it be to put those hips back in? What frustrates me more is that there is a brace that MAY or may not have helped if they would have just started taking xrays in the beginning. But I only found out his hips were out because of a broken femur and the doctor… who was not even our doctor… wanted to put them in place. But the doctors in the clinic. They say why? Why? He isn’t walking! MAYBE BECAUSE I DO NOT WANT MY CHILD TO LIVE IN PAIN! That is why! I think the worst of this could have been prevented. And the more I research this. He has NO femoral head! His joint socket is not deep. HOW COULD THEY JUST PUT IT IN if that is what this doctor here does? OF COURSE it will just come back out! DUH DOCTOR! I am not an idiot! And by looking at his hips I don’t see HOW it can go back in unless you want him to sit in the splits all the time!
The more reading I have done, Hip resurfacing would be a good option for him. It is not a total hip replacement but a metal femoral head and joint socket. They will be meant to fit into each other. The worst part of that surgery is they have to cut the femoral head… NO PROBLEM HERE! HE doesn’t have one! SO why can’t they do this? Oh oh… WHY SPEND THE MONEY IF HE ISN’T FUNCTIONAL? These people need to get off their keesters behind their desks and come meet these kids and people. Don’t deny a decision until you really get to spend time with them! NEVER DENY A CHILD! ESPECIALLY MINE! Whew… better get off my soap box.
The doctor in Beverly Hills wants to do the surgery. He described it as reshaping the bone and digging out the socket. Again… I think Hip Resurfacing sounds like less work with better outcome. So now I sit and wonder why these doctors have no hope. Why they don’t try. OH YEAH… because they get paid the big bucks later on when they have to fix the problem!
My next step.. To find ANOTHER opinion about his hips. I need to find another orthopedic doctor.
As far as Santana. He has had a rough night. He vomited as I was loading him in the car last night after my nieces 18th birthday party (Happy Birthday again Brittney!). Then when I put him to bed and did his meds, he vomited again. I know for a fact it is vomit because it was red… like his medicine that goes directly in the stomach via G-Tube. The fact that he is even sick (sad face) but also the fact that he has a FUNDO and should NOT vomit! I am not sure I would do it again. Unless he started aspirating the vomit of course. But I don’t know. He was running a fever last night but not today. Seems as though his ear still hurts and it is his last day of anti-biotic. Pray he gets over this fast so he can continue his AMAZING recovery!
Uncategorized | Santana's Mommy | 
January 23, 2010 3:50 pm
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Heartbreaking Story « My Right Hip — January 25, 2010 @ 6:20 am
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By Brenda, January 25, 2010 @ 4:07 pm
Lindz,
We are praying that God gives you the strength and vision to know what to do next. Don’t lose faith as that is the one thing that the doctors can’t argue with. We know that God has a plan and that we have to be willing to follow it at HIS pace. Hang in there and know that we love and miss you guys tons. Hugs and kisses to all. By the way, how is “Papa” doing since his little holiday mishap? Love ya
Brenda and her Boys
By kandie, January 26, 2010 @ 5:56 am
I met you and your family when Santana had his unfortunate drowning accident at St. Joes. I was working there at the time in CHild Life. I have followed you through all this and am so amazed at the recovery sweet Santana has had. I will keep him always in my prayers and in my heart for you. Stay strong and feisty! You are such an inspiration to all mothers!