Where was I?

Day 284

So, you thought I fell off the face of the earth. Actually, we have been at our church’s Marriage Conference by NAME. We were blessed to be able to go and also blessed with a room at a resort by the church for 2 nights. While it was so hard to be away from my boys, Pastor Leo was right, we needed it for James and I. I can’t begin to tell you what this conference has done to us. While this is our third year going, it is new and refreshing each time. We are more in love now than we have been in a long time. Not that we were ever out of love, but because we have made ourselves too busy to know how and what love really is. We were fine where we were at and are living life as normal as we can with what is going on, but after the experience this weekend, we realize there is more we can do. The most amazing thing was to look into each others eyes and pray. We prayed thankfulness, confessions, and blessings, what an amazing way to look into his soul!!!! I can go on about this forever but I am so tired that I am making this entry quick. For one thing, we both feel closer to each other and our relationship with God more than ever. My strength has been renewed. I can live each day in the present and not the past or the future. Because today, present, is a gift from God!

So, where were the boys? Lorili and my dad stayed the night here Thursday and Friday night. Lorili stays awake all night and we had our nurse during the day on Friday and Saturday. Janet (James sister) drove to appointments on Friday and Saturday. Without these guys, we could not have enjoyed my time with my loving and adoring husband. Thursday night, Jett spent the night with our neighbors and went to school with them. It was amazing enough that he made it through the night! But he loves all those kids to death! He really looks up to the older boys. Thanks guys (not sure if I am allowed to mention names). Santana did awesome. His nurse said he was really quiet for most of the day on Friday and not making a lot of noise. I think it was because he knew we were gone. Saturday morning we stopped by his oxygen treatment on the way to the church and said hi to him through the microphone while he was in the chamber with Lorili. He totally reacted. It was so amazing! He knew our voices for sure. I missed him, both of them for sure.

We have some awesome pictures of his feet flat, but I am so tired that I just can’t unload them right now! I will write more tomorrow and get some pics up. Thank you for your continued prayers! And do not forget to log on to
www.robinhoodfund.com and vote! We are in 3rd place! Let’s win!!!!! $100 is ALMOST 1 oxygen treatment! Rally the troops…Let’s go! And you can vote more than once! Thank you!

Vote Santana!

Day 280

FIrst things first! I need to thank Stacey from Arkansas. While she was a reader, she is now a strong supporter of Santana and someone I would be proud to call friend. She set up this wish for Santana at www.robinhoodfund.com . You must vote!!!! Voting begins on Wednesday, the 26th around noon ( not sure if that is central or pacific or what). Voting lasts for a week I believe. But get on it now! I also think that you can vote as many times as you want. So every time you log in to check your email or mypace, stop by www.robinhoodfund.com and vote for Santana. Registration is only a form with 4 things to fill out! Please help us out! Stacey set the wish for $50,000 but I think they only give $100. BUT EVERY LITTLE BIT HELPS! And, if we win, that is almost 1 oxygen therapy for us! So Pass it on in an email to EVERYONE. Put it on myspace bulletins. Pass the word and vote for my angel! Whew, thanks Stacey!

You know, there are times when I think I am alone in all of this, but I know this is not true, not after the wonderful baby shower given to me by some FRIENDS at church. It amazed me at the turnout. They were not there to give gifts to baby "X" as my grandma calls him, but they were there to support my family and I and show their appreciation of the blog and me letting them into our lives by being transparent. Baby "X" got SO many cute clothes. I can’t thank you all enough! God bless you all!

Well, are you ready for some AWESOME NEWS?! Santana has tried to sit up 3 times! He has brought his back off the bed about 5 inches in a sit up position! He is so amazing! He gets so frustrated too. I can’t describe to you what it looked like! The first time, my mom, James, and I were on the bed in his room about midnight talking and he started moving a lot and rubbing his eyes! I was waiting for him to sit all the way up and say something, but instead, he rolled over and went back to sleep. James and my mom saw the other 2 times also. In fact, he also tried doing it during church, but his straps on his wheel chair did not allow him and he was SO frustrated! IT IS COMING! I believe it!

I told Santana that all I want for my birthday is a smile. I would be ok if he did not talk, just a smile. I want to see his pearly white teeth! That is what I want. But he certainly does not have to wait a month for that!

Speaking of a month, in 1 month from today, I will be starving myself from food and water preparing for my surgery scheduled at 3:00 pm. So, most likely I will have the baby around 5ish. I will miss my boys terribly those few days. Luckily Jett is off of school the first 2 weeks in October so we can spend some time with him before his new little brother gets here.

Thursday is a GI doctor appointment. A doctor that goes to the Oxygen Chamber looked at Santana’s food and saw that there is cow’s milk in it, even though it is lactose free, and suggested getting a formula that would suit him better. How are we to know he isn’t reacting with a lot of mucus from that. So we will see what happens. I also want to get a swallow study ordered too.

Speaking of swallowing. I had mentioned baby food and the Magic Bullet and I need to thank Kathy for responding via email saying she had an extra one still in the box. She got that to us and I can’t thank her enough. I was going to use Santana’s account and get one that following weekend, but she blessed me before I did. THANK YOU!

I got a lot to do. I will write later about anything else going on in my life…but that would take a while, I have a lot going on! Thanks to everyone who continues to bless us and THANKS for the prayers! We feel them!

PS….VOTE FOR SANTANA RIGHT NOW AT
www.robinhoodfund.com Well, starting Weds. at noon!

Brought Back to December 16th

Brought Back To December 16th
September 20th, 2007 – Day 275

Have you ever had a pretty decent day but in a matter of a moment your stomach is in knots and you feel dizzy because of something that had happened, you heard, or read? That is exactly what James and I are feeling right now. We received a copy of the police report on Santana and read it. We read it, we cried, we questioned, and we felt our stomachs bottom out. I can’t even stand up without getting dizzy. It definitely took us back to that day. The positive thing was that one detective was told that he would not make it through the night and if by chance he does, he will be a vegetable for life. I could not help but to wonder if this is it. If this is Santana. Either way, we are adjusted and are getting back to “normal” as far as being able to go places. But my mom would not let me think like that and reminded me that he has already surpassed a lot of things they told us. They talked about getting him off life support for the chance he could be vented for life, but look, he breathed above the machine after 5 days. I am definitely pulling out the positive, but reliving that day hurts and we are aching right now. But all we can do is to pick ourselves up and keep on going.

On top of this, before even reading the police report, I got a call from Jett’s school that he threw up a little in his class and for me to come get him. His teacher told me is seemed a little more like anxiety. He was first upset from some boys throwing wood chips at him on the playground and he was in a full cry. This isn’t like Jett. He gets mad or upset, but not to bring him down like that. He drew me a picture because he made sure his teacher knew that he missed his mommy. But then after his lunch recess, he was upset to where he vomited a bit. I think he is going through his time now. It’s almost like he knew we were going to read that letter and be upset today. I guess we have been strong for so long that it was time to release it. Jett is pretty good but he just goes into a sobbing cry when he misses his brother or wants to play. Of all of us, he is the one who had to adjust the most. I love that kid so much that it hurts to see him like this.

So, just pray for Jett. He is really upset about all this. I think Santana is doing better than the rest of us right now! Thank you for your continued support!

Oh, speaking of support! The Missing Piece Foundation surprised us with a $300 support check for Santana. I can’t thank this AWESOME foundation and Ty enough. They always seem to lift us right when we are down! I am glad that Santana is their chosen Angel, but they have been our God Send Angel!

Experimenting with Santana

Day 274

Santana is still striving to do his best. His eye contact is improving and we are noticing that he is seeing the color yellow quite well. Of the 3 fish on his mobile, the yellow one is the one he tends to follow. In the car on the way to his oxygen treatment, James and his nurse said that when a yellow bike went by with the guy in a yellow outfit, he sure was looking out that window.

2 nights ago, I had Santana do a little taste test with some applesauce. He really was too tired to really focus on getting his mouth open, but the little that he got, you can really see his swallow reflexes going. His eyes grew a bit bigger too! Even Sunday on the way home from church I gave him a drop of Pepsi out of my straw and he flinched and his eyes widen with excitement. Little by little, I will get this boy to eat. I need to get to the grocery store and get some baby food. I see now that it comes with DHA which is a supplement I have been wanting to get him anyway. A friend suggested the magic bullet too because you can get just about anything to mush. But I am not sure we, ourselves, eat healthy enough for him to join us… : /

I went to my foot doctor yesterday, Dr. Discont, who is just AWESOME, and we discussed foot drop in Santana’s case and he gave me their reps number for Dynasplints. I googled them this morning and I think THIS IS WHAT HE NEEDS. Even if I pay out of pocket, I am getting these. They are like serial casting but they are just removable and tension adjustable splints. The funny thing he said, without knowing what we are doing as far as therapies, is that with Oxygen and Physical therapy, with time, maybe a long time, those ankles could push up depending on the neuro side of it. So guess what?! We are on the right track all ready! He was careful not to advise me what I should or should not do, but the first thing he suggested we already are doing. So it was good enough for me!

When I was on the website, I fell in love with their neuro wrist splints too. I want those too because his left wrist is quite rigid again.

Well, that is all the updates I have for now. Oh…and PRAISE GOD our temperature is coming down here in Arizona! I can be happy again! Heat don’t do well with me.

This and That

Day 272

It has been a busy week. I apologize for not keeping you updated. But just remember, no news is good news. You would know if we needed prayer for an emergency! Santana has been doing great. His eyes just seem to be more in focus everyday. He is now starting to track one of his fish on his mobile in a smooth circle now. He used to be like an infant who would be looking but if you moved to fast he would have to find it again.

Speaking of newborn… I am 38 days away from my scheduled c-section…HA! If I make it that long. Absolutely nothing is fitting me and it is so depressing! Not to mention by the time I walk from the car to anywhere, I need to sit down for a breather before I go on. I don’t remember struggling this much with my other boys. But then again, I am carrying a lot more than a baby, if you know what I mean.

Last night, I took Jett to church (James stayed home with Santana) so he can be involved in kids choir, HE IS SO EXCITED ABOUT IT! The service was about taking the straight path. Not going around the long way or waiting another day to follow Jesus because minutes later may be too late. The thing that really stood out was a story Pastor Tommy told about a woman who brought her baby to the alter and the pastor asked to see the baby and when the blanket was pulled back, the baby had obvious deformities in his hands and the lady said it was from all the drugs she had used during her pregnancy. I could not help but to think of my little Santana and how healthy he was and now he is TEMPORARILY crunched up in an unnatural way. Then I thought, what did I do? I was already following Christ. We were a family that was heavily involved in the homeless bus ministry. We were serving and preparing the food but just 3 weeks prior to December 16th, we decided the kids were old enough to take them out on the busses and we began to do that again. It was so rewarding to see the hurting smile and appreciate what we did. They all adored the kids. But now, we can’t give our time like we did and like we enjoyed doing. It was ripped from under us. But why? We were doing the missionary work of God right in the middle of our city, but because of what happened to Santana, we can not do that. His immune system is so weak, we can not expose him to to many people with the slightest thing as a cold or something more serious. Why can’t we reach the homeless anymore? What did I do to deserve having my healthy child’s young years robbed from him? If anyone knows me, 18 mos. to 3 years old are my favorite years. They are just so curious and they learn so much in that short time. But Santana’s years slipped from under him.

It has been a little tough for me this last week, maybe because it was 9 months yesterday since the accident. I didn’t realize it until I went to write the date down on this entry. But even Jett has been sad for his brother. I was hoping I could report another big improvement by now, but time is not in my hands.

So, for those who saw the CPR article in The Arizona Republic Phoenix edition, the story was all wrong. Someone brought me the article and said they were confused about how the accident really happened. The article stated that they were all swimming together. No, they were not swimming in the middle of December. I clearly repeated it more than once that I was told by investigators that they were playing on the side yard when Santana disappeared. So, I was pretty upset that my quotes had words changed and none of it was fully accurate, but I know the truth and it really doesn’t matter.

Oh, I guess the most "excitement" we have had is that Saturday afternoon Santana’s feeding pump broke. I called the number and they could not bring we one till Sunday morning. So I had to do 2 one hour feeds by gravity and the 8 hour one also. The problem? It sucks it down in less than half the time. The bigger problem, before I went to bed Saturday night, I did not tell James that the pump had just the right amount of 360 ml for the night. He got up around 1:00 am and saw the bag was empty and added another can. Let’s just say we skipped his 10:00 am feeds because he was slightly overfed. Hey! We all stuff our face once in a while…

Thank you for the prayers. And for those who are waiting for a bracelet, we had to order more so as soon as they get in, we will ship them out! Thank you for your support and may God Bless You!

One more thing… I have been told that some people have been emailing me but I have not been getting them. I know most people get a bounce back but some don’t and assume that I get them. I apologize, I try to write something short to acknowledge I am getting them. So please don’t give up getting a hold of me! Maybe try the message board because I can log in and get your email address to respond if you need me too! THANK YOU!

Santana is a Trooper!

Day 266

It was a quick surgery, well the surgery itself was, we were there for 3-4 hours total. He came out of it pretty fast. Although, I was nervous because the Doctor came out and talked to us to let us know he did great and then went back to do his next one. Low and behold, he was out it like 5-10 minutes talking to the next mother. But what made me nervous was in a few minutes they came and got her to see her child, why were they not getting us? "Oh no, he is not waking up from the anesthesia!" I begun to panic in my head. But whew, like 5 minutes later they came and got us. His little arm was squirming around and he was waking up.

He must be in some pain because he has been super stiff and arching his back really bad. He sounded junky all morning but we could not suction anything out. We could not find ANYTHING, but we could hear it. Now that his ears are released, his nose and mouth is pouring out junk. In a long run, this might help with the secretions after all. Now the hard part will be to keep those tubes from getting wet. When Jett had tubes, we had custom fit ear plugs made. I think I am going to find out where I did that and have those made so we don’t have to worry about it.

I was stumped today for a while because we got a UPS box and in it was a baby bath chair we had registered for. I was nervous that someone had bought it online for the shower and it accidentally came to us. I went to the box again and found a packing slip and it was from someone who has been reading this site and keep in contact with me through my mypace and heard about the shower when I was asking for email addresses. She is all the way from Arkansas. What a surprise! And! It got me excited to have this baby. I haven’t had time to think about it, but it reminded me that it is right around the corner.

Speaking of, I need to thank Robin and the girls helping for putting this shower on. All they wanted me to do is give email addresses for evites. The problem…I didn’t have many, if any emails to give so I used the ones who responded to my request for them on Myspace. They seem really excited about this shower and said that over 30 people rsvp’d and that there are still 30 who has not responded or even looked at their email yet. I was so amazed. The support we have is just awesome. God has sent WONDERFUL friends to get us through these times! We may be in the valley, but these people are our rope to pull us out! Thank you to everyone involved!

Our nurse should be back tomorrow, so I will get to stay home and make a bunch of phone calls and try to get organized. We are still trying to figure out if we want the nursery upstairs or downstairs. Never thought that life changing events could make simple discussions a lot more difficult.

Thanks for your prayers today! And don’t forget to pray for the families involved in 9/11 and all the troops! Oh and look close at the picture. He is totally cuddling that lion. I tried to pull it away, the fur makes me nervous while he is sleeping, and he pulled right back!

Santana is a Trooper

Santana is a Trooper
September 11th, 2007 – Day 266

It was a quick surgery, well the surgery itself was, we were there for 3-4 hours total. He came out of it pretty fast. Although, I was nervous because the Doctor came out and talked to us to let us know he did great and then went back to do his next one. Low and behold, he was out it like 5-10 minutes talking to the next mother. But what made me nervous was in a few minutes they came and got her to see her child, why were they not getting us? "Oh no, he is not waking up from the anesthesia!" I begun to panic in my head. But whew, like 5 minutes later they came and got us. His little arm was squirming around and he was waking up.

He must be in some pain because he has been super stiff and arching his back really bad. He sounded junky all morning but we could not suction anything out. We could not find ANYTHING, but we could hear it. Now that his ears are released, his nose and mouth is pouring out junk. In a long run, this might help with the secretions after all. Now the hard part will be to keep those tubes from getting wet. When Jett had tubes, we had custom fit ear plugs made. I think I am going to find out where I did that and have those made so we don’t have to worry about it.

I was stumped today for a while because we got a UPS box and in it was a baby bath chair we had registered for. I was nervous that someone had bought it online for the shower and it accidentally came to us. I went to the box again and found a packing slip and it was from someone who has been reading this site and keep in contact with me through my mypace and heard about the shower when I was asking for email addresses. She is all the way from Arkansas. What a surprise! And! It got me excited to have this baby. I haven’t had time to think about it, but it reminded me that it is right around the corner.

Speaking of, I need to thank Robin and the girls helping for putting this shower on. All they wanted me to do is give email addresses for evites. The problem…I didn’t have many, if any emails to give so I used the ones who responded to my request for them on Myspace. They seem really excited about this shower and said that over 30 people rsvp’d and that there are still 30 who has not responded or even looked at their email yet. I was so amazed. The support we have is just awesome. God has sent WONDERFUL friends to get us through these times! We may be in the valley, but these people are our rope to pull us out! Thank you to everyone involved!

Our nurse should be back tomorrow, so I will get to stay home and make a bunch of phone calls and try to get organized. We are still trying to figure out if we want the nursery upstairs or downstairs. Never thought that life changing events could make simple discussions a lot more difficult.

Thanks for your prayers today! And don’t forget to pray for the families involved in 9/11 and all the troops! Oh and look close at the picture. He is totally cuddling that lion. I tried to pull it away, the fur makes me nervous while he is sleeping, and he pulled right back!

Minor Surgery Tomorrow

Minor Surgery Tomorrow
September 10th, 2007 – Day 265

Not much to report. I am dragging. I could not be more happier to have James home helping out with all this. Today, we had no nurse, again, and we are both EXHAUSTED at only 8:00 pm. If it wasn’t for him, I am not sure I could continue these appointments.

Tomorrow (today by the time most of you read this) we have to be at the hospital by 7:45ish to check in for his ear tube surgery. We are not sweating this because we did it with Jett and it is a quick procedure. Originally we thought we would have to spend the night to monitor him, but the ENT (ear, nose, throat) doctor feels comfortable doing it outpatient. At least he will be at a hospital…but we know NOTHING will go wrong because we are praying for a hedge of protection around him!

It is time I think of going to bed since it will be another long day. Oh…and no it is not 8:00 pm …I ALWAYS get distracted when I start to write. This time I had to go make time to read with Jett before he fell asleep. It amazes me how kids start to recognize words and then next thing you know they are reading. I was schooled a bit tonight. I was trying to help him sound a word out and low and behold he caught me sounding one of the letters out wrong. Don’t you know, “a 5 year old knows EVERYTHING.” – as quoted from Jett this weekend.

Think of Santana tomorrow as he goes into surgery 9:20 am Mountain time! Pray he comes out from being put under well!

A Run Down of our BIG Appointment

Day 261

First of all, I want to make sure I get this out. There is a boy named Luke that suffered a traumatic Brain Injury 6 months ago today. He does not have his eyes open…YET. But we are believing that Our God, the great healer, is going to do something AMAZING in his life too. His family have passed information back and forth with us. They are great people of faith so let’s believe that Luke will be another miracle right along with Santana. The family is asking to say a special prayer for them today! They were on my mind from 3 am to 4 am this morning. I pray they felt my prayers then.

Yesterday was an EXTREMELY long day. We were so exhausted. Our day started around 5:30 am where we all had to get ready. We dropped Jett off at a friends house (whose kid is in the same class) at 7:00 am and zoomed up to St. Joe’s CRS clinic by 8:00 am. Santana started with an Occupational and Physical therapist evaluating him and measuring his stretches. I was so stinking proud of Santana. Obviously they want the first measure, which if he was worked longer he could have gotten a better stretch, BUT… his right leg, the one that was always the stiffest, the one I had a dream the 1st day in the hospital that he was all well but a limp in that leg, bent 100 degrees! Shoot…I was happy if it was 90 degrees! And his left leg bent at 120 degree angle! I was so proud of him. Especially after a long day of therapies the day before.

So, from there, we went up a floor to the spactisity clinic at 9:00 am. First psychologist and social worker came in and we got some information for Jett and they wanted to know what we thought we wanted to do for Santana. Then a VERY nice neurologist came in. I absolutely LOVED her. She talked to us about the baclofen pump and the meds he was already on. She was a little shock at the dose of his baclofen by g-tube. We discussed lowering it, or when we ever could know if he is getting too much and if that is what is keeping him functioning at his full potential. Then the pediatric doctor came in to discuss the different options. At this point I wanted to crawl in a corner with a blankie and cry “mama!” (just kidding…but it was overwhelming). After her, an orthopedic doctor was supposed to come up and talk about the options and what he thought. After waiting a while, they found out his clinic ran over and he did not have time to make it up to us so we will have to reschedule and come back. Although I have a orthopedic doctor, I have heard WONDERFUL things about this guy, so now I can get a second opinion. Needless to say, we did not get out of the parking lot until 12:15. We were already worn, the little room was hot and the chairs were hard.

From there, we went straight to Hyperbarics to do an hour session. Lorili met us there so we went and grabbed a quick lunch while waiting. We didn’t get home till about 3:15ish. We were so BLAH last night. I thought I would have slept better than I did, but at 3 am I was wide awake, with Santana whom was coughing. I didn’t attempt to go back to sleep until after 4:00 am but from there on I was jumping up every 20-30 minutes for Santana, one being a stinky smell (which he cried to let me know). When I thought I was settled, my alarm went off, then 20 minutes later his food was beeping because it was done, then I turn around to see Jett. But I will be okay because I know that God will give me strength to finish the day! I think my nurse is back tomorrow. Either way, Thurs. and Fridays are the easiest days!

I guess you want to know my conclusion of information. Well, for those who don’t know, the baclofen pump is like a hockey puck surgically placed under the skin with a tube that runs to his spine (where the medicine will go first). You can control the dosage with an electric wand. Every 3 months, it will need to be filled with more medicine. How do they do that if the pump is UNDER the skin? They numb him and just poke a needle through him and into the pump. EWWWW! Sounds a little abrasive if you ask me! So what is this pump going to do compared to the oral? The oral baclofen takes a while to go through his system and to his brain then to loosen up everything. The thing is, it doesn’t last long either. And, it is affecting his brain and his alertness. The pump will have a lower dose going at all time that will focus just on his legs. Will this fix his feet? Um no.

I have been asking for the heel cord surgery, but they keep telling me that he will push out anyways in 2 years. 2 YEARS! That is a long way to worry about that! Come to find out, with the baclofen pump, he will still need that surgery. That is 2 MAJOR surgeries! I was like…WHY CAN’T WE START WITH THE HEEL CORD SURGERY!? They want him to be more relaxed and that is why it would benefit better with the pump. Oh and YES, the pump can be removed. However. I just would rather opt on the heel cord surgery. The OT and PT said he would be a great stander kid if we got those fixed. Well…if he had better head control…BUT I THINK IT WILL COME! So needless to say, we are still a NO on the pump. To me, it has not been around long enough for me to say it is the greatest thing in the world. Plus, he is not pushing his feet like he was. He is much more relaxed. And yes, maybe for the average family that doesn’t go above and beyond their regular therapies once a week, it will go back. But we have this kid up and going all the time and he would be in his AFO’s anytime I thought his feet might drop. WE WANT TO SEE SHOES ON THIS KID!

Whew, that is a lot to chew on. Do you agree? Either way, it is not an emergency situation so this could take MONTHS to decide and actually have done. The wait time for appointments is ridiculous! That just shows me, there are too many hurting kids and families with disabilities and we are not alone.

Well, I gotta take off for 02 treatments. Praise God for showing Santana’s potential and Pray for Luke today!

No Sleep at a Sleep Study

No Sleep at a Sleep Study
September 3rd, 2007 – Day 258

Last night, James dropped Santana and I off for his sleep study. As you can see in the picture, he had to wear a bi-pap mask the whole night. He actually had a really good night and slept on his back the whole time. Usually he is on his side to avoid choking but once the study started, I did not have to suction him once. He was awesome. Now the question is, will the doctor call this week and recommend him being on a bi-pap machine at night or not? It isn’t a huge deal, but if we were to go anywhere (ha..yeah right) it would be one more bulky machine to drag along with us.

Santana and I have been laying around cuddling all day. While Santana did sleep last night, I didn’t. I was up too much checking on him. Jett is bored out of his mind. I wish we could have made it to California this 3 day weekend for 1 last family vacation before life changes again. But from what I understand, it is hotter there than here. And we are in record breaking heat right now. So I was happy to just sit in my air conditioned house.

This week, we do not have our nurse but the timing came at the right time because it is also the first week of James’ leave. So the 2 of us will be doing the appointments together. Wednesday we go to St. Joe’s CRS to hear the baclofen pump talk. They can say what they want, I don’t want it. I have not met one person who knows someone who has it….doctors and therapists don’t count, I want to hear from trust worthy people, and I want to know that it has been removed from the patient and that patient is doing great! Is that asking too much?

From what I understand, there was a lady at the fundraiser at Arizona Hair Co. with her daughter who was a near drown but was walking around like any other kid. They were hoping to run into us. I wish I would have known, I would have come down there in a heart beat to listen to her story. I don’t find a lot of positive outcomes in the cyber world. I know they are out there, I just wish I could validate things with them.

As far as ear tubes, we are still waiting to hear back from the scheduler to set up his surgery for it. Another night in a hospital. But the closer I get to having this baby, it is the best place for me to be! So, when that happens, I will let you know.

Not much going on that I can think of at this time, besides all that I have written. It will be a busy week for James and I so pray for strength! Our miracle is coming, I just know it. God has not let us down yet! Our faith will get us through this time of trial!